A Study to Develop an Information Booklet for the Caregivers of Children Suffering from Nephrotic Syndrome

A study to develop an information booklet for the caregivers of children suffering from nephrotic syndrome.

1. To assess the knowledge of caregivers on nephrotic syndrome. 2. To identify the information required by the caregivers on nephrotic syndrome. 3. To develop an information booklet on nephritic syndrome for the caregivers based on their identified needs. 4. To find out the opinions of caregivers regarding the use of information booklet.

The study was conducted in pediatric nephrology department of a semi government hospital of Mumbai, which is located at parel. The research approach used in this study was survey and the research design was a descriptive.

Were the caregivers of children with nephritic syndrome attending the nephrology OPD and admitted in the ward of selected hospitals in Mumbai. Fifty caregivers of children suffering from nephritic syndrome from the selected hospitals in Mumbai formed the sample. The data gathering process began from 22^nd August to 27^th September 2003. The data collected was analyzed and presented in terms of frequency and percentage.

The major findings of the study using the scoring key revealed that majority of the caregivers had fair knowledge (26–50%) about manifestations, drug regimen, rest, activity, dietary regimen, ascites and edema, urine examination and follow-up. Only twenty five percent of the caregivers had poor knowledge about the importance of kidneys to human beings and causes of nephritic syndrome as the score was below fifty percent. All aspects’ were included in the booklet. Majority (84%) of the caregivers opined the booklet as very good and only six percent as good.

The preparation of the booklet was a scientific process, based on the learning needs of the caregivers. The booklet was prepared, arranged and organized in such a way that the objectives of the study would be achieved and would serve as a useful tool in educating the caregivers, resulting in better care of their children suffering from nephritic syndrome.