Quality of Life of Childhood Spinal Cord Lesion Patients at Home after Completing Rehabilitation Program from CRP

The purpose of the study was to assess the quality of life (QOL) of childhood spinal cord lesion (SCL) patient at home after completing rehabilitation program from Centre for the Rehabilitation of the Paralysed (CRP). The study objectives were to assess the present situation of quality of life of childhood spinal cord lesion patients in their community and to explore in-depth effective ways of coping their life in the community considering age. Usually after SCL, an individual's social, financial, and domestic position in turn affect issues concerning quality of life and self-image. This study was adopted to explore these thematic factors, grounded differently in childhood SCL patients social and community life which played a role in their poor quality of life. A qualitative study was conducted to explore the experience of childhood SCL patient about their QOL. Convenience sampling method was chosen to select the samples and semi-structured face to face interview was carried out to collect the data. Content analysis was used to analyze the data thus several thematic factors were identified which leads poor QOL in childhood SCL patient. The main findings indicated that lack of accessibility to get physiotherapy at home, mobility problems, to functional activities, to education, employment, etc which influence quality of life negatively. That is why it is important to interact between the physical and social environment to provide proper accessibility to the childhood SCL patient to maintain standard quality of life.